The Sickle Cell Enigma Consultants believes that every sickle cell sufferer has the right to quality care. This can only be achieved if funding is made available to educate healthcare-givers, teachers, and other professionals about the condition. We aim to provide this.

   The organization does not discriminate between the types of sickle cell disorders or the ethnic groups concerned. Both sexes are equally affected, and should have equal access to support and services in a confidential and sensitive environment.

We respect the views of every patient.

   The organization being a new one, for now only benefits from the support of members and a wide range of individuals, but we look up to organizations nationally and internationally who together can play a vital role in its success.

   The organization has a network of committed volunteers who play an important part in running the charity, providing administrative backup, and helping with fund-raising activities.

   Donations from the public, fund-raising activities, and membership fees are what we depend on for our life support. Without them, we would be unable to finance the essential welfare, counseling, and educational projects that would help children with sickle-cell anemia and their families lead much-needed healthier and happier lives.

OUR CONTACT:
3862 Grand National Drive
Florissant, MO 63034

Helpline: 314-395-6636
Fax: 314-395-4488
E-mail: info@sicklecell-ec.org
Website: WWW.SICKLECELL-EC.ORG

   For further information on who we partner with please vist: Health and Life International & 5 Linx

  Thanks for the opportunity to appeal for your partnership with Sickle Cell Enigma Consultants. These are some of the issue that prompted the formation of this voluntary organization, and it is very important that we stay connected with all of our friends who are affected with Sickle Cell Anemia.  Sickle Cell Enigma Consultants IS COMITTED AND GIVING IT ALL WE'VE GOT just to be able to "Rekindle Ability in this Disability. We definitely need your support/partnership and help to make it happen because we can't do it all alone. Sickle Cell Enigma Consultants is an organization set up to provide informal support to families that are experiencing the adverse effects of Sickle Cell syndromes and Stroke in young children.

  Sickle Cell Enigma Consultants Int. (SCEC Int.) is a branch of Sickle Cell Enigma Consultants which is based in USA. SCEC Int. focuses on the rural areas of West African Countries.

  This organization has been set up to help babies, children, young teenagers and adults that have sickle cell anemia. There is an urgent need to educate families and the general public about sickle cell and dispel the stigma and taboo associated with this condition. People with sickle cell and their families need to educate themselves on the strategies of living and help themselves whilst living with this condition. As a result SCEC & SCEC Int. has outreach and workshop programs to reach people with this condition and help them.

  The mission of SCEC Int. in Africa is to provide preventive primary care to people with sickle cell anemia by providing prophylactic drugs. This will help to reduce secondary complications, relief from pain while creating public awareness to the condition as to help eradicate the crude method of treatment.

We therefore appeal for grant to help us pay salaries for one full time office administrator and two part time staff. Take care of payment of other day to day administrative running expenses like telephone/utility bills, production of leaflets & postages. Also to provide transportation for educational & outreach programs, and home/hospital visit to affected families to offer encouragement and advice.

  We do hope you will help us have some respite through having a helping hand in the running of the office.

  We sever Missouri/its environs and some part of Africa. Now, parts of Africa are thrilled and thankful because in the midst of poverty with little or no medical assistance, sickle cell anemia affected people are still able to live above 50 years, which was not the case as many died as infants or before the age of 30. But still some of our friends, brothers and sisters in many cities and villages are still lacking basic medical care and lack of awareness as to better management of this disorder. God has heard their cry and prayers as WE and our Faithful partners like you are here to help.

  We are partnering with other organizations to provide sickle cell awareness, good health education, proper management, healthier lifestyle, mobile consultation clinics to several communities, and on the spot medical assessment/treatment to needy sickle cell sufferers (in Africa), plus provision of some vitamins and antibiotics.   All these we do through our project to help combat, reduce the agony and most of all the heredity of sickle cell anemia through intensive GENOTYPE and NEW BORN SCREENING campaigns and YOU CAN PARTNER WITH US!

  Through our outreach programs and social activities people with this condition are ministered to in a very friendly manner & environment. Such activities also provides forum for interaction and opportunity to share experience with others in the same condition. During such activities they are thought the Dos & Don'ts of sickle cell; what to & not to eat, type & duration of exercises to engage in etc.

  In the developing countries, the effects of poverty, malnutrition, lack of awareness, facilities, medications and literacy on this condition is quite devastating. Due to poverty children and adults with sickle cell cannot afford to take essential medication that they need to prolong their lives. There is very serious problem with getting effective medication because of high rate of medications adulterations, so we would like to help with providing essential medication to those living with sickle cell anemia.

  Countless number of Africans who have sickle cell anemia has a right to live a fulfilled life but because of poverty and ignorance, some children die before their third birthday and majority in their prime.

  We will therefore appreciate any donation/partnership that will help make Sickle Cell Enigma Consultants Int. a success. For a guide we would require the following to enable us work effectively;

For our international program we would require the following to enable us work effectively;
Antibiotics like Penicillin Analgesics/ Pain killers Ion medications Essential immunizations against childhood diseases Volunteers & Staff for outreach programs Spiro meter Oxygen masks Buses/Trucks Lab in a suit case	Crude method of Sickle Cell treatment in some African Countries

We will be grateful to receive donations of any kind, be it time, your expertise or money. Thank you all & God bless you.

Once again, thank you for your partnership!

Sincerely,

Dr Nne Ihuoma
(Project Director) 501(c) (3) Organization

We can be contacted at: Sickle Cell Enigma Consultants
3862 Grand National Drive
Florissant. MO 63034
Phone: (314) 395-6636, Fax: (314) 395-4488
E-mail: info@sicklecell-ec.org

Below you will find downloadable leaflets, most in MS Word doc format.

Leaflets and Books

Leaflets: List of leaflets attached, single copies are free. Multiple copies are charged at $1 each plus shipping and handling.

Books: for a token donation of at least $10

Posters, T-shirts, and pin badges: for a token of any reasonable amount

Video Cassettes: (Understanding Sickle Cell Disorder) for a reasonable donation, too.

To order, please contact Sickle Cell Enigma Consultants
 

Online form available plus downloadable .pdf copy

If you have any questions, please contact us, and thank you for identifying with us.
 

Cash
Check
Credit card/debit card (Online access available)

Thanks for your partnership!

Sickle Cell Enigma Consultants
3862 Grand National Drive
Florissant, MO 63034, U.S.

Helpline: 314-395-6636
Fax: 314-395-4488
E-mail: info@sicklecell-ec.org
Website: WWW.SICKLECELL-EC.ORG